Genetics Data and Surveillance

The Oregon Genetics Program uses multiple data sources and surveys to gather information about family history, healthcare provider practices, genomics, genetics, and chronic disease. By collecting and analyzing population-based data, our program can monitor health trends and use the data for program improvement and evaluation.

Oregon Behavioral Risk Factor Surveillance System (BRFSS)

The BRFSS is the largest continuously conducted telephone health survey in the world.

BRFSS Results

• 2007 BRFSS Results: topics include family history of cardiovascular disease, health care provider practices, patient behavior, and direct-to-consumer marketing
  
  
• 2006 BRFSS Results: topics include family history of diabetes, health care provider practices, patient behavior, and direct-to-consumer marketing
  
  
• 2005 BRFSS Results: topics include family history of diabetes, health care provider practices, and patient behavior
  
  
• 2004 BRFSS Results: topics include family history of diabetes
  
  
• 2003 BRFSS Results: topics include family history of diabetes
  
  
• 2002 BRFSS Results: topics include family history of diabetes
  
  
• 2001 BRFSS Results: topics include family history of diabetes
  

Oregon General Knowledge Survey

The Oregon General Knowledge Survey is a telephone health survey about health knowledge and beliefs.

2007 General Knowledge Survey Results: Topics include

• understanding of genetics and family history
• collection of family history information
• sources of where people find genetics and family history information
• genetics topics people want to learn more about

Pregnancy Risk Assessment Monitoring System (PRAMS)

Oregon PRAMS collects data on maternal attitudes and experiences prior to, during, and immediately after pregnancy for a representative sample of Oregon women. PRAMS allows the Oregon Genetics Program to monitor whether health care providers talked to pregnant mothers about tests that screen for birth defects and about folic acid consumption and awareness.

• 2002 PRAMS Results: topics include discussion of Prenatal Screening Tests   
  
  
• 2002 PRAMS Results: topics include offering Prenatal Screening Tests   
  
  
• 2001 Discussion of Prenatal Screening PRAMS Results   
  
  
• 2000 Discussion of Prenatal Screening PRAMS Results   

Genomics and Family History Survey Questions   The University of Washington Center for Genomics and Public Health (UWCGPH) created a comprehensive collection of genomics and family history survey questions from select state and federal population-based surveys from 1999-2006. This compilation includes the Behavioral Risk Factor Surveillance System, the National Health and Nutrition Examination Survey, and the HealthStyles survey (HealthStyles is an annual mail survey of the U.S. population aged 18 and older that examines health-related attitudes and behaviors).

• UW CGPH Survey Inventory  

Oregon Genetics Data Assessment

Information summarizing a broad assessment of genetics data maintained in Oregon, which was completed in preparation for the creation of Oregon's Strategic Plan for Genetics and Public Health. Reports in the assessment were created for the Oregon State Genetics Plan (~2000-2002). Some information may no longer be current. Please contact Genetics Program Staff if you have questions about supporting materials.

Surveillance Publications

BRFSS Posters

• Poster on Family History of Diabetes: Incorporating genomic data into the BRFSS
  
  
• Poster comparing four states' BRFSS family history and genomics surveillance questions
  
  
• Poster on Using BRFSS to Collect Genomics Data   

For other publications see "Publications and Talks"