Internet Resources

National Resources

• CDC National Office of Public Health Genomics
  www.cdc.gov/genomics
  This site provides visitors with information about human genetic discoveries and how they can be used to improve health and prevent disease.  This site also includes links to genomics programs in other states.
  
  
• CDC National Center for Birth Defects and Developmental Disabilities
  www.cdc.gov/ncbddd
  This site provides visitors with information about birth defects prevention, surveillance and research. It includes information about the national Early Hearing Detection and Intervention initiative.
  
  
• U.S. Health Resources and Services Administration/Maternal and Child Health Bureau Genetic Services Branch
  www.mchb.hrsa.gov/programs
  This site provides information about federal initiatives to improve maternal and child health services and outcomes, including genetics-related services and outcomes.
  
  
• National Newborn Screening and Genetics Resource Center
  http://genes-r-us.uthscsa.edu/
  This site provides information and resources in the area of newborn screening and genetics to benefit health professionals, the public health community, consumers and government officials.
  
  
• Genetic Alliance

  http://www.geneticalliance.org/

  Site links to support groups for genetic conditions and other information about specific genetic conditions.
  
  
• National Human Genome Research Institute
  www.genome.gov
  This site provides a wealth of information about research, clinical care, and education related to the Human Genome Project, including information on ethical, legal, and social issues.
  
  
• Genetics and Public Policy Center
  http://www.dnapolicy.org/
  Site links to Center which works to help policy leaders, decision makers, and the public better understand the rapidly evolving field of human genetics and its application to healthcare.
  
  
• GeneReviews

  http://www.genereviews.org/

  This site provides comprehensive information about genetic conditions, national and international genetic clinics, and genetic testing laboratories.
  
  

Regional Resources

• Child Development and Rehabilitation Center (CDRC) at Oregon Health & Science University
  http://cdrc.ohsu.edu
  (includes Oregon's Children with Special Health Needs Program)
  This site links to the Oregon Genetics Program co-sponsor, CDRC. The site includes information and resources for children and families impacted by special health needs, including those with inherited conditions and birth defects.
  
  
• Western States Genetics Services Collaborative

  http://www.westernstatesgenetics.org/
  

  This site offers information regarding the collaboration among Alaska, California, Guam, Hawaii, Idaho, Oregon, and Washington on a federally funded multi-state project that seeks to coordinate and increase access to genetic services.
  

• Pacific Northwest Regional Genetics Group
  http://mchneighborhood.ichp.edu/pacnorgg/
  This site has a wealth of information pertaining to genetics activities in the Pacific Northwest Region (Oregon, Washington, Idaho and Alaska). It contains educational materials for consumers, including materials in multiple languages.
  
  
• GeneForum
  www.geneforum.org
  This site is devoted to informing the public about current and emerging genetic policy issues, fostering public dialogue, and promoting public participation in genetic policy development.